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Think like a patient

Around 2,000 teenagers and young adults in the UK are diagnosed with cancer every year. These vulnerable patients often feel isolated, bitter, confused and afraid as they struggle to come to terms with and overcome a life-threatening disease.

In recognition of the difficulties young cancer patients face, eyeforpharma are hosting their first annual Mobile Health Competition. Applicants must submit an idea for a phone application that will help teenage cancer patients manage their condition and make their lives easier. To help pick the winning idea eyeforpharma have created their very own super panel, comprised of teenage cancer survivors and charitable bodies.

The competition is open to anyone working for a pharmaceutical company, advertising agency, healthcare organisation, as well as patients themselves. The winner will have the opportunity to develop their application and see it launched. They will also win $5,000, which they can donate to a cancer charity of their choice.

The Teenager Cancer Trust, PatientsLikeMe, LIVESTRONG Young Adult Alliance, and a host of other charitable, patient, and mobile specialist companies have partnered with eyeforpharma for the competition.

Here at Hive we welcome any initiatives aimed at improving patient care and engagement, so we urge you to get involved and spread the word.

The closing date for entries is January 3rd 2012. 

http://www.eyeforpharma.com/mobilehealth/


Lessons From a Bygone Era

This article was written by Max G, an account executive candidate as part of a first interview to help us see where his MA in International Relations from LSE and our world of healthcare collide. We are delighted to welcome Max to Hive in January.

This is, to quote Tim, a Darwinian moment. The cusp of a revolution and a moment for new thinking and creative minds. The patient is coming, the power structures are diversifying and it’s the job of folks like us to harness that power and use it to effective ends for our clients. Critically, this will mean truly respecting the conflicting and often contradictory wants of patients, instead of merely seeing digital and all things social as just another channel for vulgar old-ad indoctrination. More than anything else, this will mean actually listening to patients: learning from them and understanding their needs beyond the most basal of levels.

Just for the sake of thinking, it’s fun to draw parallels across disciplines. It can also be genuinely productive.

Take the body of literature surrounding U.S. Public Opinion and U.S. Presidents. At the LSE I took a course that addressed the interaction between Presidents and public opinion and I was particularly fascinated by the moment at which the existing consensus completely broke down. Critically, the power-players – i.e. the President – had absolutely no idea how to handle the new climate. It was akin to Reagan’s Secretary of State, George Shultz, visiting Gorbachev in the Kremlin in the late 1980s and telling him ‘The Information Age will destroy your economy if you don’t afford it the room to breathe’. The powers that be were the ones to lose out.

Think of the drugs companies as the President and the patients as the voters. To take the cast a step further, imagine Carter’s team of experts and his Presidential pollster Patrick Caddell – as the tired old ad man who simply clings to the methods of old.

Prior to the end of the Vietnam War and the election of Jimmy Carter in 1977, political scientists and commentators alike agreed that the ‘bully pulpit’ style of Presidential leadership dominated and that the masses had little to say or think, other than that which they’d already been told. In other words, if the President shouted loud enough, the public generally went along. The people were ignorant and malleable. This was termed the Almond-Lippmann consensus.

Similarly, for years the GP-patient relationship consisted of linear, one directional messaging where the GP told the patient what’s good for him and the patient minded his Ps and Qs. Why, as a patient in this climate, would you engage with a brand that meant nothing to you? You were simply told to take it. The brand name sounded scary and the active ingredient scarier. There was no reason to connect with a brand and more importantly, no one had ever muted it as an option. The President knew what was best for you.

Back in the world of politics, The Vietnam War changed the underlying conditions of public opinion dramatically and new scholarship by the likes of Katz and Witkopf asserted that the public was increasingly ‘activated’ on foreign policy issues. The consumer of policy had suddenly woken up. The trouble was, no one had bothered to tell Carter. Or rather, both him and his top-team wouldn’t listen. In critiquing the failures of Carter, one school of thought argues that Carter’s bold and brazen honesty and New World Agenda was simply too much for a typically Conservative American electorate to consume in one go. Honesty, it is argued, was the cause of his failure. For another school, Carter simply didn’t care about public opinion at all.

On the contrary, Carter failed not because he cared nothing for public opinion, but because he failed to appreciate the changes to the underlying landscape and continued to treat the electorate – or for the sake of this analogy his ‘customers’ – as ignorant drones ready to be led. The contradictions in their views meant nothing; little had really changed. From this rapidly expiring rationale, Carter tried to sell something like his human rights policies as ‘non-ideological’ and one-fit-for-all, as opposed to understanding the complex underlying reasons why different voters supported the very same policy, but for markedly different reasons. Far from pleasing everyone, this linear approach to strategy failed everyone.

Back in the world of health care in the 21st century, almost all major stakeholders now appreciate the degree to which the landscape is changing. They get that choice and patient empowerment is coming and that patients are broadly embracing of it. Worryingly however, many traditionalists see this new medium as broadly compatible with the tired old information dissemination of old. Bully pulpit ring a bell?

That’s where Hive and our team of smart cookies come in. We see the irony in giving a presentation on digital in a room full of stuffy insider types through the medium of an overhead projector. Instead, we actually seek to understand patients in their most complex – and thus natural of underlying forms. We tailor our clients’ products to this end and take power back through the empowerment of others. To some observers, this method might seem like pretension defined. Or to others as a serious challenge to the status quo. To us, it’s a holistic approach to the demands of an entirely new and still-emerging world. Digital isn’t just a corporate buzzword and choice means genuinely listening to and respecting the needs of patients.

The way we see it, you can either come with us for the ride or end up like another Jimmy Carter – as much as we love the old peanut farmer.

 


What can 5 million books tell us about healthcare?

A few months ago, a new programme called Ngram Viewer graduated from Google labs. This tool, which sits within Google books, allows you to see how often phrases have occurred in the world’s books over the years. Google have digitalised over 15 million books, that’s almost 12% of all books ever published. With Ngram viewer you can now graph the occurrence of phrases up to five words in length from the year 1400 through to 2008 across 5.2 million books. With the Ngram Viewer you graph and compare phrases from these datasets over time, showing how their usage has waxed and waned over the years and rapidly quantifying cultural trends.

There are lots of different things you can check but you need to careful when interpreting your results. Experts warn that some effects are due to changes in the language we use to describe things (such as ‘The Great War’ vs. ‘World War I’). Others are due to actual changes in what interests us (‘slavery’ peaks during the Civil War and again during the era of the Civil Rights movement.)

So what can the Ngram viewer tell us about healthcare? Well it seems that the words ‘doctor’ and ‘hospital’ have had a similar cultural presence from 1800 to the present day. In comparison the use of the word ‘patient’ has steadily increased with a massive boost post-1950.  Most interesting is the word ‘health’, which had a huge cultural presence in the 1600s followed by a dramatic slump in the early 1700s. It’s been increasing ever since.

Go and try the tool yourself, or have a look at what other people have searched for on the Ngrams Tumblelog. 


Scoop.it – curation for us all

Scoop.it, a tool that lets one and all hunt, gather and distribute content from around the Web launched publicly today after a year in an invite-only beta.

We were lucky enough to be one of the beta babes and we have been curating Patient Centricity News for a couple of months now.  Its dead straightforward, and is backed by a plum algorithm that once seduced helps you find relevant articles and videos. It cracked the automated pitfalls of death by junk content by leaving the curator to choose what’s right for them, and its this for me that has made the Scoop.it experience so fresh.

As “curation” becomes the next buzz word it been a joy to be part of the big beta crowd.  With more than 2 million visits per month, and traffic is growing by 35 percent month, we look forward to reviewing load more healthcare comms publications.