Hive Health

Viagra burst onto an expectant  market 12 years ago on the 1^st of July. Wow, how time flies!

I was fortunate enough to have been on the UK launch team for Viagra, and we were desperate to ensure that it was promoted ethically and was given enough space to be taken seriously – as a product that met a genuine patient need. One that impacted on the lives of millions of people.

The press went mad, “sex drug” shouted from every red top. Knee jerk Health Secretary Frank Dobson’s fears about rampant demand introduced restrictions, which clamped down treatment provision resulting in only 17% of those men who would benefit getting a prescription. GPs were told to restrict their prescribing to one pill per week. All driven by fears that the NHS would be swamped by demands for the new drug.

It’s all seems ages ago and now strange to think of a Health Secretary wanting to dictate the sex lives of their citizens. ‘Once a week Dobing’ was laughed at by many, but still acceptable.

The category perceptions changed, and ED was forced into the sunlight. Now discussed and treated  in a very different world. Walking in Soho with Debbie I spied this photo, a demonstration that perceptions change, but somewhere some of your audience remains intransient.  How things have moved on!

Ian handed me a fascinating article on ‘Should patients be paid for taking their medication?’. (He also said it was high time I wrote a blog. )The story described a trial where patients with mental illness were paid £15 for each fortnightly visit to their clinic where they were administered their depot.

My immediate answer was to say, of course they bloody shouldn’t be paid! Treatments are prescribed to make people feel better and help them function in the world, surely that is incentive enough?

Hold on, I thought – it’s plainly not enough. Poor compliance is a fact of mental healthcare. It’s easy to speculate on why these patients would avoid their medication. We need to ask about the conversations they are having with their HCPs. Are professionals helping patients reach an informed decision about treatments?

Well, at least one survey says not really. Here, 59% of patients taking an antipsychotic reported that other treatment options had not been discussed. Almost two thirds said that they hadn’t been given written information prior to starting their medication. And 46% said hey hadn’t been warned about its potential side effects.

The NHS and HCPs need to look at the way they are engaging with patients. How many have read the NICE guidance on patient adherence and choice, published in January? And how is the NHS supporting them in implementing change?

Of course, it’s not easy for anyone. The befuddling thing about informed choice is that patients can refuse medication, and the professional’s obligation is to respect this decision. But what if the individual is antisocial, or a danger to self or others? Why are we paying these guys, really – what are the savings down the line? To make a judgment on this pilot, we need to know more about these patients other than that they are poor compliers.

If the scheme sees the light, bitter laughter will accompany jokes about kids being paid to go to school and likewise to adults for behaving on a night out. No-one’s going to like the idea of a pay-for-peace society. Whatever happens, let’s hope these patients get something positive out of it.

Our ever loving ears hearken once more to the digital pitter patter of patient empowerment.  UCB Pharma have partnered with patientslikeme.com to bring an Epilepsy community to the site.

Patientslikeme.com is a privately owned initiative that encourages patients to post details about themselves. This real world, outcome-based data is shared with individuals and organisations who work to improve health outcomes, including pharmaceutical companies, research organizations, and non-profits.

30% of epilepsy patients are refractory to treatment, so this move is good news for patients, HCPs and even competing Pharma. Over 37,000 patients are already registered on the site as well as 3,000 caregivers. Any epilepsy community should include the voice of caregivers, as a significant proportion of epilepsy sufferers are elderly or have learning disabilities.

Patientslikeme.com doesn’t just collect data from patients, it provides quality information and allows them to blog and communicate with peers. It’s a site that really does seem to have patients’ interest at heart. That’s why we like it – and so congratulate UCB for being a part.

But it should be. Buried in amongst the papers this morning was the announcement from Sanofi-aventis of their intention to donate 100 million influenza vaccine doses to the developing world via the WHO. Well done Sanofi. See if you can find it on the BBC.

Sanofi-aventis to donate 100 million doses of pandemic influenza vaccine to WHO
Sanofi-aventis CEO Chris Viehbacher announced Wednesday that the company plans to make a donation of 100 million doses of influenza vaccine to the World Health Organization to help developing countries confront the influenza A (H1N1) pandemic. Speaking at the Pacific Health Summit, Viehbacher stated that “the future of our industry is linked to the healthcare solutions that will be found for emerging countries,” and added that the donation is being made in support of WHO Director-General Margaret Chan’s “call for common action to fight the pandemic.”